A: We are extremely lucky to be California residents because most of Nate's medical care is paid for by California Children's Services (CCS), which is a government program that helps special needs kids. Insurance pays for a lot too. He's an expensive kid.
Q: How much sleep do you get a night?
A: When Nate is healthy, I can get 7 hours. Scott and I both get up once a night to do some maintenance stuff. Often it's more than that. Some nights we hardly sleep at all. But at minimum, I set an alarm for 1:00am, do my chores, and go right back to sleep. Scott is used to having to get up. I find it painful every single time.
Q: Do you have hobbies you like to do that you actually get to do?
A: Sort of. It's more a matter of energy than time. By the time Nate gets to bed and all the must-dos are taken care of, I'm often so wiped out I can't even think of taking on a project. But when I do have the energy, I still really love to sew, embroider, craft, and dream up ways to make our apartment a little cheerier.
Q: Do you like visitors who aren't family to visit? Or are visitors stressful?
A: I do like it most of the time. I'm happy anytime Nate gets a chance to socialize, since we're usually pretty isolated. We have a lot of appointments but I try to make time for at least one (healthy) friend or cousin to come over every week.
Q: If you or Scott are sick, what do you do differently with Nate?
A: Let him watch a lot of tv and call Grandma to beg for mercy/babysitting.
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