Tuesday, October 30, 2012

Halloweens Past

Nate was 6 months old on his first Halloween.  He was a hunter and spent the day playing in a hospital bed.
home from the hospital
zombie hair
In 2011, Nate was a chubby He-Man.

loved that shaggy 'do

 Stay tuned to see what Nate's going to dress up as this year!

Monday, October 29, 2012

Have No Beard

Today while I was holding Nate he looked at me lovingly, stroked my chin, and said, "Have no beard.  Only Jesus have a beard."  I love him.

Tuesday, October 23, 2012

Gilbert & Graham

Nate has taken a cue from his dad this year and really embraced Halloween.  Pumpkins, witches, and especially ghosts are a very big deal at our house this year.  I can't remember how he got here, but there is a ghost in our house named Gilbert (who happens to look a lot like a burp cloth).  Nate flies him around all day and makes him say "oooooooooo" and "boo!". 

Graham the Ghost came to our house one day when we were playing in Nate's room.  Nate asked for Gilbert so I reached into the dresser drawer and pulled out a burp cloth.  He was not fooled, he knew the real Gilbert was out in the living room on the couch.  So I told him this ghost was Gilbert's brother Graham, which seemed to satisfy him, and now there are two ghosts making mischief at our house.


Monday, October 22, 2012

Bike Party

Saturday was the first ever SMARDy Pants 40 Mile Ride.  It was a huge success and we felt so much love and support for Nate.  We had 18 riders representing 80 donors and amazingly we surpassed our fundraising goal.  I just can't tell you how blessed we feel and how excited we are to get Nate a wheelchair accessible van and to be able to contribute to SMARD research. 
Saturday morning we told Nate we were going to a bike party.  He took the idea very seriously and barely cracked a smile the whole day.  The rest of us had a lot of fun.  The weather was perfect for a morning ride and we enjoyed getting to welcome back the riders and chat with everyone. 

We owe an enormous debt of gratitude to all of our donors and volunteers and especially Mike Jacobsen, who first conceived the idea for the ride and made all of this happen.  The funds we raised will make a huge difference in Nate's life and the lives of other children living with SMARD.
We still have some t-shirts left from the event, so if you are a donor and would like one, please let me know!  If you're not a donor, shirts are $10 each and come in S-XL.  You can email me at smardypantsnate@gmail.com to get your shirt.

Thursday, October 18, 2012

Bike Ride this Saturday

The SMARDy Pants 40 miler is THIS SATURDAY!  Our group is riding to raise money for 1) SMARD research and 2) a wheelchair accessible van for Nate.  Our family simply cannot express how grateful we are for the generosity and support we have been shown for this ride. Thank you so much to every donor and supporter and all of the volunteers who have made this happen!  These funds are going to change Nate's life.

We would love to see you on Saturday!  Our family will be at Lincoln Park in Los Altos at 11:00 to say hi to all of you and welcome back our awesome riders (we're expecting them back around 11:30).  Nate would love to meet his fans.  You'll also have a chance to get a SMARDy Pants t-shirt for a small donation. 

P.S. It's not too late to sign up for the ride!  You can continue to get sponsors for your ride even after Saturday, so please join us.  More info on the ride itself here.

Hope to see you Saturday!


I know we have been MIA for the past few weeks.  We have been busy-busy-busy with a million different things, not the least of which is...
The stars finally aligned and we were able to get a downstairs unit in our apartment complex.  Turns out a move downstairs is more work than a move cross-country.  We are still getting settled but we love not having to battle the stairs everytime we leave the house.  The new apartment is pretty close to the one we were in before except for this time we hit the architectural jackpot with a 1982 original partition wall blocking off half the front room!  On the bright side we are one step closer to getting Nate his power wheelchair, and that is worth all the dust bunnies that have already found a home in this thing.